General Information
Registration is now open – Join us for the7th “MPN Horizons Conference
DATE: 18th – 20th November 2022
LOCATION: Netanya, Israel
MPN Advocates Network steering committee is excited to announce that the 7th MPN Horizons will be a Hybrid event, with both in-person and online attendance options. We will be bringing the attendees to Netanya, Israel, the hometown of Giora Sharf, our beloved steering committee member and LePAF representative.
In addition to developing our member advocates, the MPN Horizons conference addresses topics like – Novel therapies in MPNs. In this event, we will hear from patients and leading experts about the challenges faced by patients with MPN. We will also look at Effective complimentary therapies for MPNs. Advocacy sessions this year will feature interactive topics such as access to treatment in low-income countries, NCCN Patient Guidelines and Basic Health Economics. The nature of Learn, Share, Grow is to deal with questions like these, and our conference offers the opportunity to facilitate and support quality education. The conference also provides a unique opportunity for exchange of ideas, interaction, sharing of best practices, establishing alliances and networking across borders, as well as opportunities for you to bring back to your own organization.
We invited top speakers such as Nathalie Cook, Australia, Naveen Pemmaraju, M.D., Associate Professor, USA, Prof. Martin Ellis, Israel, Prof. Ruben Mesa, USA.
We very much hope that you will be able to attend the 7th conference whether in person in Netanya or virtually from the comfort of your home. We have an exciting program covering both advocacy and MPN Science.
Our conference will provide you with the knowledge on how to make a difference in the lives of patients, identify opportunities in patient support & advocacy and learn from the experts – both patient advocates and physicians by networking opportunities with MPN advocacy leaders around the globe.
Click the registration desk on the platform to register.
MPN Horizons 2022 will be held in Netanya, Israel. We will offer registration for up to three participants per organization:
Option 1: The first delegate from the patient organization will be provided with a full scholarship, provided they meet the eligibility criteria. You will receive a full scholarship that includes an economy class return ticket to Tel Aviv and you will not be required to pay the conference fees.
Option 2: There is a waiver of the conference fee (800 Euro) for a second delegate from the same patient organization, so you will need to arrange your own transport to Tel Aviv.
Option 3: The third delegate from the same patient organization will be responsible for funding their own travel as well as the payment of the 800 Euros conference fee.
Criteria for eligibility
Participants who wish to take advantage of the above-mentioned options must fulfill the following requirements:
- Be a staff member or volunteer of a MPN patient organization that is an active member of the MPN Advocates Network
- An individual who is in the process of setting up an organization for MPN patients
- Possess a position that allows them to participate in ongoing advocacy activities and initiate new initiatives
- Ability to communicate in English
- Depending on your choice, the registration form will have the above-listed options, and you will have to specify which option you want to choose before submitting the form.
If you need further information, please contact Marija our Project Manager on email: doneva@mpn-advocates.net or on Tel: +389 77859659 through WhatsApp, Viber or Telegram.
We will offer registration for up to three participants per organization:
Option 1: The first delegate from the patient organization will be provided with a full scholarship, provided they meet the eligibility criteria. You will receive a full scholarship that includes an economy class return ticket to Tel Aviv and you will not be required to pay the conference fees.
Option 2: There is a waiver of the conference fee of 800 Euro for a second delegate from the same patient organization, so you will need to arrange your own transport to Tel Aviv.
Option 3: The third delegate from the same patient organization will be responsible for funding their own travel as well as the payment of the 800 Euros conference fee.
A conference fee of EUR 800 is applicable to the third delegate and will be invoiced to the participant in the name of the Leukemia Patient Advocates Foundation, Switzerland, in advance of the meeting. The conference fee covers:
- Maximum 4 nights of accommodation
- Local transportation from Tel Aviv airport to the conference hotel and back. (app 45 minutes each way)
- Food and beverage (breakfast, lunch and dinner), during the conference.
- Free Wi-Fi internet in conference rooms, and in bedrooms too.
- The general costs of the conference.
It is the responsibility of the second and third delegate to arrange their travel to Tel Aviv International airport (e.g., flights). The conference fee does not cover incidental costs like bar, mini-bar, phone calls, taxi costs, double room supplument, relatives attending the conference, and any other non-official activities.
Payment of the conference fee for the third delegate of the same organization must arrive before the start of the conference. It must also be paid in case of cancellations after 8th November 2022. The conference fee should be paid by internet transfer to the foundation. Should another postal address be required on the invoice for the conference fee, the delegate must provide a note during the electronic registration process, stating the full postal address and the name of the organization who will pay the conference fee.
Conference fee and travel costs for representatives of the sponsors
Sponsors’ delegates are also expected to register on our Horizons Platform. Room bookings will then be made by the logistics agency. Sponsor representatives are expected to settle their room costs at the hotel. We will organize their individual local transport to the conference venue if they provide us with their flight details at least two weeks before the conference. Costs for attending the conference, including the daily delegate rate and all meals, will be covered by us and will not be invoiced to pharma representatives.
If you have any Questions?
If you need further information, please contact Marija our Project Manager on email: doneva@mpn-advocates.net or on Tel: +389 77859659 through WhatsApp, Viber or Telegram
Arrival, departure dates and times
Arrival date: Thursday 17th November 2022
The MPN Horizons conference begins on Friday 18.11 at 11:00 am with the opening, welcome session by our chair Werner Zinkand and Giora Sharf.
Depending on traffic, you’ll need at least 1h to get from the airport to the hotel. Arrangements will be made for a shuttle service from the airport to the hotel (see details below).
Depending on flight schedules, departure is on Sunday, 20th November 2022 or Monday, 21st November 2022
It is recommended that flights do not depart before 16:30; if you intend to participate in the City Tour, flights should not depart before 20:30.
Visa
Please make sure that you have valid travel documents, please visit our page that explains Visas in detail.
Travel of patient advocates
Our team will arrange flights for the first delegate from the patient organization, Steering Committee, as well as speakers. If this applies to you, please refrain from booking your own travel. On the registration form, please specify your preferred departure date and time, your preferred origin airport, your preferred airline, your date of birth etc. In addition, please let us know what day and time you would like to return. Taking into account the limited budget of our non-profit organization, the travel agency will do its best to book your flights based on your preferences. Getting the best available rate is important – it increases every day closer to the conference – so please complete this process as soon as possible.
It is expected that the second and third delegates from the same organization and those from Pharma sponsors will arrange their own travel to the Tel Aviv International airport (e.g. flights).
Free transportation will be provided from the airport to the conference venue and back again.
After booking your flights, please provide Marija and Giora from our management team email: giora1@inter.net.il with your travel details so we can arrange your local transport and accommodation accordingly. These details should be provided no later than 1 month before the meeting 18th October 2022.
Travel of Steering Committee members, receivers of scholarships, and speakers
Our team will arrange flights for Steering Committee members, the first delegate from the patient organization, as well as speakers. If this applies to you, please refrain from booking your own travel. On the registration form, please specify your preferred departure date and time, your preferred origin airport, your preferred airline, etc. In addition, please let us know what day and time you would like to return. Taking into account the limited budget of our non-profit organization, the travel agency will do its best to book your flights based on your preferences. Getting the best available rate is important – it increases every day closer to the conference – so please complete this process as soon as possible.
Listed below are the contact details for All Tours our travel agency:
In case of emergencies: Avigail’s mobile number +972 504 265 880
or Nimrod’s Mobile: +972 504 265 878
For any of your travel queries please copy Giora Sharf at: giora1@inter.net.il
Travel of sponsors representatives
You should book your own flights. Please send us your flight details so we can arrange your transfer to the hotel and book a room accordingly. You will pay for the room directly at the hotel.
For any questions, please contact Marija our project manager on email:
doneva@mpn-advocates.net or on Tel: +389 77859659 through WhatsApp, Viber or Telegram
HOW TO GET A VISA TO ISRAEL: TIPS AND ADVICE
The nationality of the traveler determines whether or not a visa is required. Israelian visa requirements do not apply to citizens of several countries, so they can travel to Israel without obtaining one. Click here to view the list of countries whose citizens are exempt from entering Israel here: https://www.gov.il/BlobFolder/reports/tourist-visa-table/en/2022_Foreign_Visa_to_Israel.pdf
Marija, our Project Manager, will be able to supply you with accompanying (supporting) documentation when you apply for the visa prior to commencing your application.
Accompanying (supporting) documents that will support your visa application will be:
- Flight Itinerary
- Hotel Confirmation
- Invitation letters by:
Local Patient organisation – Flute of Light
MPN Advocates Network – LePAF that will detailing that all costs including travel, hotel food will be covered by LePAF
On average, Israel visas are processed in two weeks (10 business days), but it may take longer in some cases. The processing time may be longer if you are missing any documents or if it is a busy time of year. For this reason, you should contact Marija before applying.
We would like to remind you that you need to make sure you have valid travel documents with a valid passport for at least six months, and if you need help, please do not hesitate to contact Marija at doneva@mpn-advocates.net or on mobile: +389 77859659 (available on; WhatsApp / Viber & Telegram)
Thank you.
Giora & Marija
MPN Advocates Network
We will print your poster in Netanya
Here’s your chance to show off your poster in Netanya since it’s easier than ever. We will print your poster directly in Netanya and even hang it up for you if you create your own or use the template available here. As a result, you will not have to worry about printing and carrying it with you. The only requirement is that you must send us your file no later than Sunday 6 th of November 2022 to take advantage of this excellent opportunity. To send your file, please e-mail Marija at doneva@mpn-advocates.net
What is the MPN Advocacy Poster Area?
The MPN Advocacy Poster Area is an area inside the venue where MPN Horizons 2022 participants can display a paper poster illustrating their MPN patient advocacy activities, projects and outcomes.
During MPN Horizons 2022 conference, your poster will be shown and accessible by all conference participants, those who are on location in netanya as well as the virtual participants at home through our platform, and shared throughout our social media channels.
The aim of the Poster Area is to provide participants with the opportunity to share their key activities and learn from the initiatives and experiences of other MPN organizations from around the world in MPN advocacy.
Win the Best Poster Award!
During the conference, there will be an opportunity to vote (once only per organization) for the best poster and we will announce the winners on Sunday, 20th November 2022.
So, we invite you to send us your file no later than Sunday 6th November 2022 to take advantage of this excellent deal. To send your file, please e-mail Marija at doneva@mpn-advocates.net
This is an amazing opportunity to showcase your organizations’ yearly activity or a special project that made an impact on the MPN Community in your country on a worldwide platform and share your activities.
How can I submit a poster?
Participants who would like to display a poster in the MPN Advocacy Poster Area are invited to create a poster using the template and recommendations available. Participants can use this poster template or can have their own design. But do not forget to send your poster to Marija by Tuesday 4th November 2022.
Be creative!
You can be as creative as you like or you can use our poster guidelines and template, we have made for you. You can download the template on our website https://www.mpn-advocates.net/
MPN Advocacy Best Practice presentations at MPN Horizons 20220.
What is the Advocacy Best Practice Sharing session?
The MPN Advocacy Best Practice session, to be held on Saturday 19th November 2022 will include very short presentations and concise, focused discussions on successful advocacy topics held by your groups. The presentations should describe a key initiative that you have implemented, of which other MPN patient organisations could learn from and where they may also be inspired to do the same. You should also share what went right and potentially what went wrong and what you would do differently next time. The presentations should NOT be about your organisation as such.
The aim of the session is to provide participants with the opportunity to learn from the initiatives and experience of other MPN organisations in these advocacy areas, not to learn about specific patient organisations as such.
Participants are now invited to submit abstracts for this session until 10th October 2022. The MPN Horizons Steering Committee will then review all abstracts and select those that will be presented during the session.
What is the format of the session? How am I expected to present?
The MPN Advocacy Best Practice session consists of 6 short (maximum 10 minutes, maximum 10 slides) plenary presentations covering an initiative of an advocacy topic. Each of the presentations will be followed by a 5 minutes discussion. The presentations should not be about the organisation but about one particular initiative or activity.
How can I submit an abstract?
Participants who would like to present in the session are invited to submit a short abstract (maximum 300 words) by email on an advocacy or capacity building initiative (not on your organization!).
Potential topics for presentation include, but are not limited to:
- Actions that solved a treatment access problem
- Advocacy networking – joining forces to address an advocacy challenge
- Reaching patients who are not online
- Working with volunteers
- Promoting wellness using complementary therapies
- Tools that facilitate communication with patients’ families (eg. children)
- Conducting a patient survey
- Using guidelines as an advocacy tool
- Supporting caregivers
The presentation should NOT present your organisation but a successful initiative of yours, so other advocates can learn from your experience and potentially do something similar in their countries!
What happens after I have submitted the abstract?
The MPN Steering Committee will review the abstracts and select which ones will be presented during the MPN Advocacy Best Practice session. If your abstract is not selected, please feel encouraged to bring a poster with you to the meeting to display in the poster area.
Participants will be informed 3 weeks before the conference, to give you enough time to prepare your presentation. The slides must be provided at least 9 days prior to the conference, to be reviewed. Please note the number of slides should not exceed 6 slides.